Striking Back with Cody: MD Anderson Cancer Center

Wednesday, July 21, 2010

MD Anderson Cancer Center

Just a quick up date this time. I will have more info later but I just wanted to let everyone know that Cody and our parents flew to Texas on Sunday July 18th. They had meetings all day Monday July 19th with the doctors and surgical team at MD Anderson Cancer Center. They did a PET scan on Tuesday July 20th. They are flying back to SLC today and chemo is sceduled for tomorrow as long as Cody's counts look good. They have been so busy with tests and meetings that I havn't really had a chance to get too many details but they were very impressed with the hospital and doctors and really liked the surgeon, Dr. Hayes-Jordan. Surgery will most likely been sometime late September. I will post more once things settle down a bit and I have a chance to talk to them a bit more. They will be in SLC for about a week.

I just wanted to thank everyone for all the support and prayers.

Cheryl
(Cody's Sister)

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A little about the Cancer

Desmoplastic Small Round Cell Tumor, also know as DSRCT, is considered a childhood cancer that is predominantly found in boys and young adults. It is an extremely rare, highly aggressive cancer that is usually found as masses in the abdomen. Desmoplastic small round cell tumor is frequently misdiagnosed which is why the prognosis remains poor. This is an aggressive, rare, fast spreading tumor.

There is no standard protocol for treatment but it usually includes aggressive Chemotherapy, Radiation, and Surgery.

A special thank you...

Russ and Janae want to personally thank their families for being so supportive. They wouldn't be able to do this without each and every one of you. There have been so many donations coming in and fundraisers being put together by members on both sides of the family. Thank you so much for all the love and support.

"You don't choose your family, they are God's gift to you, like you are to them" - Desmond Tutu

A big Thank You, also, goes out to the the Town of Winnemucca. The community has pulled together in so many ways to show their support it is overwhelming. Thank you!!!

Thank you to Connors Drilling and all of the employees. Connors asked the employees, Russ's co-workers, for a voluntary paycheck deduction that would go to Cody's Cancer Fund. A big thank you to all the many generous people who participated. Thanks to you a good chunck of money was raised to help with Cody's medical costs.

Upcoming Fundraisers

Striking Back with Cody Wristbands Awareness wristbands can be purchased at the HAMS in Winnemucca for anyone interested in showing their support. Family members also have awareness bands or know where to get them. 2 Brothers Communications Fundraiser 2 Brothers communications Verison Wireless 508 W Winnemucca Blvd. Ste B Winnemucca NV, 89445 (775) 625-2355 April 1st through May 31st 2 Brothers Communications will donate a portion of sales for ANY new activation or upgrade (no stipulations) to the families of Cody Nielson and Kylie Hilbish. Verizon Wireless has also agreed to match the donation with a contribution of their own.