Striking Back with Cody: Being Home

Tuesday, May 3, 2011

Being Home

Not many up dates these days. Cody is doing pretty darn good. We have been enjoying being at home. That's a change for us. Cody still takes a chemo pill Monday - Friday then once a month we go to Fallon or Carson City Nevada to an IV infusion. We will head back to Texas the end of June for another Pet Scan . He may have to have another 2 weeks of radiation again. But we won't know until we see what the scans tell us.
Thank you everyone for check-in on us.
take care
Janae

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A little about the Cancer

Desmoplastic Small Round Cell Tumor, also know as DSRCT, is considered a childhood cancer that is predominantly found in boys and young adults. It is an extremely rare, highly aggressive cancer that is usually found as masses in the abdomen. Desmoplastic small round cell tumor is frequently misdiagnosed which is why the prognosis remains poor. This is an aggressive, rare, fast spreading tumor.

There is no standard protocol for treatment but it usually includes aggressive Chemotherapy, Radiation, and Surgery.

A special thank you...

Russ and Janae want to personally thank their families for being so supportive. They wouldn't be able to do this without each and every one of you. There have been so many donations coming in and fundraisers being put together by members on both sides of the family. Thank you so much for all the love and support.

"You don't choose your family, they are God's gift to you, like you are to them" - Desmond Tutu

A big Thank You, also, goes out to the the Town of Winnemucca. The community has pulled together in so many ways to show their support it is overwhelming. Thank you!!!

Thank you to Connors Drilling and all of the employees. Connors asked the employees, Russ's co-workers, for a voluntary paycheck deduction that would go to Cody's Cancer Fund. A big thank you to all the many generous people who participated. Thanks to you a good chunck of money was raised to help with Cody's medical costs.

Upcoming Fundraisers

Striking Back with Cody Wristbands Awareness wristbands can be purchased at the HAMS in Winnemucca for anyone interested in showing their support. Family members also have awareness bands or know where to get them. 2 Brothers Communications Fundraiser 2 Brothers communications Verison Wireless 508 W Winnemucca Blvd. Ste B Winnemucca NV, 89445 (775) 625-2355 April 1st through May 31st 2 Brothers Communications will donate a portion of sales for ANY new activation or upgrade (no stipulations) to the families of Cody Nielson and Kylie Hilbish. Verizon Wireless has also agreed to match the donation with a contribution of their own.