Striking Back with Cody: Bowling Tournament

Friday, January 27, 2012

Bowling Tournament

Here in Winnemucca they had a City Bowling Tournament. Monday the 23rd was Teams so The Pinheads ( name of their team ) Cody Nielson, Freddie Ziemer, Torrey Herrera bowled. Tuesdays was doubles Cody & Freddie bowled, Wednesday was singles Cody and Freddie bowled singles. It was a pretty fun time. We won't know how they placed for a few weeks. This was the first tournament Cody has bowled in for almost 2 years. It sure was nice to be involved in bowling again.
We sure have some good boys and I'm not just saying that. They really are good kids. These guys have been friends since grade school so a very long time. Now that's what I call good friendships !!!
We are still enjoying our puppy Maya. Guess she isn't a small puppy anymore. She is now 6 months old. She sure has brought so much happiness to our home. We just love her. She has been so good for all of us. She sure loves Cody and doesn't let him get to far away from her.
He has been feeling pretty good these past few months. He is only on one Chemo pill Votrient. I have been fighting the Insurance , the drug company, the pharmacy's you name it. seams like just about everyone. seams like no one wants to pay for his chemo pills. This so called system we have doesn't help people like us. It's just WRONG. so in order for Cody to have his chemo pill's he NEED'S it cost me almost $ 6 thousand dollars. yup you read this right. but what do ya do this is my son's life I'm fighting for. Hopefully next month some of my appeals will work in our favor ??? keep your fingers crossed.
I 'm not sure I should have posted anything about his chemo pills ??? I have gone back and forth with this. guess i left it on.
Anyway Cody will need a new scan again in a few months to see if the Votrient pills are working. We are heading to Salt Lake City Utah this Monday to the Huntsman Cancer Center. We are seeing a new Dr just for a second option and to see what if anything they would do different for Cody. I will keep you posted on what we find out at the Huntsman Center .
Thank you for reading our story and for keeping us in your prayers.
take care of each other !!
Janae

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A little about the Cancer

Desmoplastic Small Round Cell Tumor, also know as DSRCT, is considered a childhood cancer that is predominantly found in boys and young adults. It is an extremely rare, highly aggressive cancer that is usually found as masses in the abdomen. Desmoplastic small round cell tumor is frequently misdiagnosed which is why the prognosis remains poor. This is an aggressive, rare, fast spreading tumor.

There is no standard protocol for treatment but it usually includes aggressive Chemotherapy, Radiation, and Surgery.

A special thank you...

Russ and Janae want to personally thank their families for being so supportive. They wouldn't be able to do this without each and every one of you. There have been so many donations coming in and fundraisers being put together by members on both sides of the family. Thank you so much for all the love and support.

"You don't choose your family, they are God's gift to you, like you are to them" - Desmond Tutu

A big Thank You, also, goes out to the the Town of Winnemucca. The community has pulled together in so many ways to show their support it is overwhelming. Thank you!!!

Thank you to Connors Drilling and all of the employees. Connors asked the employees, Russ's co-workers, for a voluntary paycheck deduction that would go to Cody's Cancer Fund. A big thank you to all the many generous people who participated. Thanks to you a good chunck of money was raised to help with Cody's medical costs.

Upcoming Fundraisers

Striking Back with Cody Wristbands Awareness wristbands can be purchased at the HAMS in Winnemucca for anyone interested in showing their support. Family members also have awareness bands or know where to get them. 2 Brothers Communications Fundraiser 2 Brothers communications Verison Wireless 508 W Winnemucca Blvd. Ste B Winnemucca NV, 89445 (775) 625-2355 April 1st through May 31st 2 Brothers Communications will donate a portion of sales for ANY new activation or upgrade (no stipulations) to the families of Cody Nielson and Kylie Hilbish. Verizon Wireless has also agreed to match the donation with a contribution of their own.